Ramblings of a ‘Rioded’ Mind

Avatar by @little_Corvus

Writing is so incredibly hard. Most days I don’t feel like I can do it well at all. It used to be something that I could do without much effort or thought. I could just string together a few sentences, and it would sound brilliant.  Or at least I thought it was brilliant. Now that I think about it though it was all probably crap. Oh! That right there, that self-deprecating thing I just did, that is a significant thing about writing that I hate. I end up thinking everything I write is total crap. Shit, I think this is crap. But it is just a blog post, so I shouldn’t be so hard on myself.

These last two weeks have been my hardest writing weeks this year. I got so behind on assignments, the weather just wouldn’t make up its damn mind, so my body decided to be an asshole and stop functioning. Then it seemed that everyone died in one week and I had to deal with all of that and my obligations. We finally get to this week, and everything seemed peachy, then I got strep throat, so I ended up in the ER for 9 hours drugged out of my minded and pumped up on steroids that I am still feeling now.  My chronically ill life tends to catch up with my professional life but never this catastrophically.  I think it is because I have never been this busy before.  I always wondered how do you become a working freelance writer if you are constantly sick? I don’t know many people who pull it off.

I worry I am one of those people who can’t quite keep up with the riggers that come along with this job. The deadlines, interviews, events, and coming up with a unique enough pitch that someone will want to publish. There is no other job that I can possibly do other than that of a writer. It’s really all I am good at and all that I am physically able to do, even though lately that seems to be contrary to the facts.

I think working with editors and fighting to get paid is something that takes the fun out of work at times. I should have to chase people down to pay me what I am owed and yet that is also apart of this freelance gig cause sometimes people will opt out of sending you the cash you were promised.

But instead of me complaining about how bogus freelancing can be I will talk about my absences from my own blog. I spend a ton of time writing for other magazines and websites that I have neglected my own space. That and I decided once I recovered from the two spine surgeries that I had, I would jump back into writing with such intensity that I haven’t had time until now to look at my site. But I am back, and I will try and write more here, and be more proactive on all my platforms.

I was thinking of using this space to start reviewing some music and doing some fun side work that I don’t get to do for the sites that I have been writing for. But that all depends if I can work out my schedule in a way that gives me time to rest and time to work in equal amounts. Cause with ME/CFS and Fibro resting is honestly the only thing that keeps my brain-fog at bay.  But I am sure none of you want to hear about that nonsense. I talk about it at length in so many articles and blog post that I feel like my disabilities are becoming something that completely defines me, and that isn’t what I want. They are a significant part of my life but not the controlling factor of everything.

Anyways what I wanted to talk about was how hard a time I have been having with writing and the disillusionment I have been feeling about the industry, but it all just meandered everywhere and ended nowhere. So I think that’s all the writing I can do tonight. Talk to you guys soon.

 

 

Me the night before my second spine surgery.

Shit Happens…

So I have had two spine surgeries within three months and I have been bed ridden six months out of this year I think.  I had been growing my hair out and I was even able to install faux locs, which looked so good. But the stress and the incredible, agonizing pain I was in made my Fibro flare up, which flared up the subsequent tactile allodynia, and made having hair hurt again. I couldn’t be in that much pain that I couldn’t control and then have the head pain which I could control. So I shaved my head again. So I’m back to being bald and lovely.

The Black Bibliophile Podcast Logo.

The Black Bibliophile Podcast Logo.

The cabin fever is intense at times. I haven’t been able to sit up for more than 3 minutes for six months. I lack the money to purchase a proper chair. I have been reading and trying to keep up with The Black Bibliophile Podcast. Which can be daunting at times because of all the formatting and research. My last two episodes have been me just talking about books and throwing my segments to the wind. I think this next episode I’ll try to get back to formatting as usual. I wanted to get back to writing also. I haven’t written a creative story in so long.

I have just been writing articles and think pieces. Which is fun but I want to get back to the science fiction stories I was so good at writing. Or at least thought I was good at. I finally finished my first zine it’s called The Cosmic Egg. It’s got all the poetry, short stories, and personal essays I’ve written in the past five years all in one 32 page booklet. I wanted to put it all together so I can move on from those stories and start new ones. It marks the end of one life and me starting another.

The Cosmic Egg Zine.

The Cosmic Egg Zine.

Financially we have hit a wall. The store is struggling because of the construction next door. This new building not only blocks the view of our apartment but it completely obscures the view of our shop from the street. So we have less foot traffic in the store. We wanted to move the location of the store but all our efforts were thwarted. We are young and so is our business. Many retail store front owners do not want to lease us their space.

So we might have to close for a month or so to find a new location for the store and to move into a new place ourselves.  It’s a lot.  All I can do is lay here and try to heal. I’m three weeks out of surgery. I can walk to the bathroom, walk up one flight of stairs (Slowly) and I can brush my teeth.  So it might be awhile until I can actually manage to help my business and household.

The world doesn’t stop. I can’t even attempt to describe my feelings on 45 and the chaos he is inciting. I’m just tired.

So look out for more zines and short stories. I’m going to try and keep the blog posts coming and keep anyone who cares updated on my life.

Standing Up, For Yourself

I am standing in my store because it is physically too painful to sit. I have 5 herniated disks in my spine and one of my disks is pushing on a nerve that goes down from my butt to my right and left legs. The best way to describe the pain is, imagine the most painful charlie horse you’ve ever had, now imagine that no matter what you do it won’t stop cramping. This goes on for weeks and only gets worse. It’s a literal pain in the ass.

The pain is so bad that I can’t write any fiction. I can’t build worlds because the pain is all I can think about. I am falling behind in all of my duties because my leg constantly feels like it is being chainsawed off.  I go to doctors, they give me pills and stretches, and a recommendation for physical therapy.  I have had this back problem for 7 years. If pills and stretches were going to help I feel like they would have already.

My fiance and I went to see John Wick 2 this past weekend, I love Keanu Reeves, I’ve seen every movie he’s made and the John Wick series is by far my favorite. Sitting down for five minutes is absolute agony. That movie is around 2 hours long and the only way I could get through it was on a cocktail of muscle relaxers and pain killers.  I don’t want to be high all the time. I want to find a way to deal with the pain without medication. But at this point all of my doctors keep pushing medication at the problem and aren’t in any way concerned about fixing the issue. Like they say, there isn’t any money in a cure.

I’ve done injections, physical therapy, yoga, pilates, herbal remedies, acupuncture, and everything else under the sun and nothing helps. I was finally after years of being told I was too young reffered to a surgeon only to be pushed back into the physical therapy/ injections loop. It’s inferiating to be told what my body needs. I have no agency when I walk into the doctors office. I am told what I feel, how I feel it, and that I am basically being dramatic. Even though my X-Rays, MRI’s, and CT Scans say the problem is gradually getting worse and preventative measures are no longer working. But when I bring this up it is just me “not giving the system a chance”. The system has fucked me for my whole life. I have had to fight for every diagnosis, and every bit of mediocre care I have received.

But instead of you know, listening to me, the patient. I am stuck at 25 using mobility aids such as a cane and wheelchair, and in constant intense pain.  This last ER trip I was in the emergency room for 3 hours crying uncontrollably because of the pain. Only to be taken back and be told I should try losing weight ( I had lost 60 pounds prevoiously and immediately dislocated my spine, proving that the fat was possibly holding my back together. Like some kind of burrito fueled glue.) , I should try injections, this told me that the doctor didn’t read my chart but then began to treat me as if I was a drug addict. Like me wanting some kind of relief from the intense pain was a crime. I had to prove to him, in-between tearful gasps, that I  was an upstanding business owning citizen. To make him feel better about easing my pain. In what fucking world does a patient have to convince a “doctor” to do their damn job.

This is my life.

I now I have to schedule an appointment with my primary to be able to convince him to refer me to a neurosurgeon. I don’t understand why I have to negotiate with medical professionals to get help so I can live my life without being in an insane amount of pain. It’s absolutely ridiculous and completely exhausting.